Cystic Fibrosis Awareness Month

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May is Cystic Fibrosis awareness month.

Did you know these CF facts?

  • 30,000 children and adults have CF in the United States.
  • More than 10 million Americans are symptomless carriers of the defective CF gene.
  • The disease occurs in one of every 3,500 live births of all Americans and about 1,000 new cases of cystic fibrosis are diagnosed each year.

I wrote last May about the history of CF, how people with CF are affected by germs, the special diet that many people with CF have to follow, and the treatments that people with CF do to keep their lungs as healthy as possible. Check out these posts or visit the Cystic Fibrosis Foundation to learn more about CF.

CF bandsAlso… we are still selling Cystic Fibrosis awareness bands for only $1.00. A portion of the money we raise is donated to the Cystic Fibrosis Foundation to help find a cure. Order one today and show your support with your purple band!

There are lots of other ways to raise money for CF research… I plan to share several other ways to help over the next couple of days.

Easter Sunday Recap

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We had a fabulous Easter filled with family and friends. Our family enjoyed our Sunday morning church celebration of our risen King! Later we enjoyed the company of some out of town friends who are visiting Tampa on spring break! We had a great, relaxing day of hanging out together.

He is risen

Since we usually spend most holidays at my parents house, they offered that our friends would be more than welcome to join us. Mom and I spent time on Saturday preparing food for everyone. We may have gone just a little overboard on the dessert table, but we couldn’t help it… they were just so much fun to make!

Dessert table

Of course, we had Mom’s famous bunny cake! I took pictures of her making it, so there will be directions to come. It’s just not Easter without bunny cake.

Easter bunny cakeEaster bunny

Mom make a lemon meringue pie as her dessert of choice. I really wish it didn’t have so many ingredients I was allergic to… yum!

Lemon pie

We made lots of cupcakes! We decorated them with Easter grass, nests, and eggs. And we made mini cupcakes… because they are cute, with multi-colored icing.

CupcakesMini cupcakes

There was tons of candy. Mom got creative on how to serve it all.

Jelly beans

And I made my allergy-safe brownies for myself.

Brownies

We had plenty of real food too, but somehow sandwiches and veggies don’t photograph as cute as cupcakes.

Real foodSandwichesFruits and veggies

We visited with Rhonda in the beautiful weather while the kids made good use of the swimming pool. The pool kept their interest the entire day and they only stopped swimming long enough to eat. I’m so glad they had a good time.

Madi floatingShelbyShelby splashingIan and MadiIan jumpingIan in splashMadisonMadison

Tonight Rhonda and I are heading out to dinner with the rest of the Tampa CF wives (her husband also has CF)! She’s taking her older kids to the movies and Jesse agreed to watch Madison while we are gone. Rhonda says trying to keep up with her will be good practice for him. Madison is just as CUTE as can be and Jesse is looking forward to the challenge.

Rocking Cystic Fibrosis with Emily Schaller

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Meet Emily Schaller! Read her inspiring story in her guest post on Shape magazine online and watch a video about how she is benefiting from Kalydeco.